A tiny baby born with skin so fragile his parents are afraid to cuddle him because the slightest touch causes him to have blisters all over his body and leaves him “looking like Freddy Krueger” needs ...
Most people may not know about epidermolysis bullosa (EB) — better known as “Butterfly Skin” — but it is hard to forget once you see it. EB is a painful, rare skin disease that affects one in 50,000 ...
Mums Natalie Stonehouse and Emma Byrne found out they only lived a few miles apart and their children have the same form of ...
Epidermolysis Bullosa, also known as "butterfly disease," is a rare genetic condition. This congenital disease lets the skin ...
For the first time, doctors were able to treat a child who had a life-threatening rare genetic skin disease through a transplant of skin grown using genetically modified stem cells. For the first time ...
When she was born, Emma’s parents were told she wouldn’t survive infancy yet, despite countless obstacles, aged 41, she is ...
In 2017, PEOPLE spoke to Brandon Joseph, who is living with the rare disease epidermolysis bullosa. While many patients die during infancy, Joseph is now thriving at 20 Andrea Pett-Joseph Brandon ...
Doctors think baby Lane's blisters are the result of a genetic skin condition. May 13, 2014— -- Brittany Weingart knew something was wrong with her son about a week after he was born when she ...
The much-loved annual Mad Hatters New Year’s Day Sponsored Swim is back on January 1st, starting at 2pm at the stunning La ...
66% of those with lupus will develop some form of skin disease. In this episode of The Expert Series, Victoria Werth, MD will teach you about how lupus can affect the skin as she describes skin lupus ...